tag:blogger.com,1999:blog-5330343405595251697.post346995516701314532..comments2023-09-05T03:45:04.898-07:00Comments on No Two Snowflakes Are Alike: Mild CFAnonymoushttp://www.blogger.com/profile/05978510057442573220noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-5330343405595251697.post-5323067934462145302010-07-04T18:38:12.711-07:002010-07-04T18:38:12.711-07:00Interesting post.
I wasn't PI until I was in ...Interesting post.<br /><br />I wasn't PI until I was in my mid-40's. Your very blessed!Aspiemomhttps://www.blogger.com/profile/13720558783668971656noreply@blogger.comtag:blogger.com,1999:blog-5330343405595251697.post-90325093999065523122010-06-02T21:14:47.485-07:002010-06-02T21:14:47.485-07:00THIS.IS.A.GREAT.POST. :-)THIS.IS.A.GREAT.POST. :-)Joshhttps://www.blogger.com/profile/04547108849214574148noreply@blogger.comtag:blogger.com,1999:blog-5330343405595251697.post-48352331282743554602010-06-01T10:02:36.018-07:002010-06-01T10:02:36.018-07:00A few questions come to mind now that I've had...A few questions come to mind now that I've had a chance to read this blog half a dozen times :-)<br />They are...<br /><br />1. When/what is your earliest memory of a CF related health issue?<br /><br />2. Do you recall any CF related changes (good or bad) that came along with puberty?<br /><br />3. Are you able to have children? Please forgive me for asking this - you need not respond if you feel it too personal.<br /><br />4. How has CF clinic accommodated your health needs? In other words, do you feel as though clinic has adequately addressed the issue of being a "mild" cfer?<br /><br />5. Have you met other mild cfers? How have their health issues compared to yours?<br /><br />Again, thanks so much for your openness. I've felt so alone since our children were diagnosed. It's reassuring to hear from someone who is rowing a similar boat.PicklePitshttps://www.blogger.com/profile/12995395058216017693noreply@blogger.comtag:blogger.com,1999:blog-5330343405595251697.post-77416071654818270212010-05-31T00:34:48.480-07:002010-05-31T00:34:48.480-07:00Thank you so much for posting this information. My...Thank you so much for posting this information. My two sons share the exact mutations as you and I am so excited to see what their lives might be like down the road. My older son has severe sinus issues as well and has already had surgery at just 2 years old. When we were told they would have "mild" CF we had no idea what that meant, now we do. Thank you again!Steffaninoreply@blogger.comtag:blogger.com,1999:blog-5330343405595251697.post-30208847257735580212010-05-30T19:50:20.479-07:002010-05-30T19:50:20.479-07:00Wow, I don't know what to say Colleen other th...Wow, I don't know what to say Colleen other than THANK YOU!!! I can't tell you what a relief it is to have such a clear picture of what "mild cf" looks like. Of course, I'm aware that each case is unique but at least you have given me an idea of what we could be seeing down the line.<br />Great post...thanks so, so much!!PicklePitshttps://www.blogger.com/profile/12995395058216017693noreply@blogger.com