Monday, November 26, 2012


In terms of CF treatments, I have it pretty easy.  I use albuterol, hypertonic saline, and pulmozyme once a day.  A lot of others CFer have much more to do each day.  But, regardless, I have been having trouble with getting all three treatments done.  The main problem is not being able to do HTS and pulmozyme at the same time.  Doctors say these need to be separated because HTS can interfere with the effectiveness of pulmozyme.  Theis means two different trips to the nebulizer.  I'm good with getting in the first treatment, which is always the albuterol and HTS.  But for some reason I am really having problems with pulmozyme.  I think the problem is a combination of forgetfulness and laziness.

I have really tired several ways to try and be more compliant with pulmozyme: setting alarms, designating a specific time, and doing the treatment first thing in the morning.  I have not been successful with any of these strategies.  A couple of weeks ago, I came up with a new solution to help me with being more compliant: I bought a portable nebulizer.  I purchased a DeVilbiss 6910 Series. It has a car adapter, so I can use it while traveling.  So my plan right now is to use pulmozyme on my way to work.  It has been working really well for me so far.



Wednesday, November 21, 2012

Where Have I Been?

I would love to say that I have not been blogging because I have been so busy, I couldn't possibly find the time to write blogs.  I would also love to say that I have not been blogging because I absolutely have nothing to say.  But the truth be told, neither are true.  Since my last blog post in August I have been to Disney World, celebrate and decorated for Halloween, traveled for work, been to CF clinic, has a sinus CT scan, planed a retirement party, and found myself with a cold.  Lot to write about. Although reading this list it may seem like I have been busy, but I have had more down time that usual, especially on the weekends.  I have really taken advantage of this time to do other things besides blog: I started watching Desperate Housewives (!), reading, crafts for the party, and watching movies.  It has felt good to have some time at home without much responsibility. 

But I have missed blogging and want to get back into the routine.  Again, this is really about me keeping track of my CF life and other things in my life, rather than having people read about who I am.  I want to keep up...and there is lots to share.