- I cough everyday. I clear my throat all the time...the more I talk the worst it gets.
- I do treatments for mucus clearance. My first choice is exercise and I use an acapella. I also have a vest, but I only use it when I am below my baseline.
- I have major sinus problems. I know I will battle this for the rest of my life. In turn, I do sinus rinses every day, twice a day.
- I take three medications regularly. They are all to control sinus infections/inflammation.
- I had sinus surgery in 2008.
- I go to clinic 4 times a year.
- I have above average PFTs, except small airways.
- I am pancreatic sufficient. I do not take any enzymes.
- My normal antibiotic is oral Cipro. A three week treatment when I am below baseline is usually the best treatment plan that works.
- I have never need IV antibiotics.
- I have only been over night in the hospital once related to CF. The stay was for one night.
- I live a pretty normal life. I am married, have two dogs, I am a homeowner, I work full time, and I have a college degree.
- I know I am lucky to be healthy and have a CF that is mild.
Sunday, May 30, 2010
Last week I posted information about my CF mutations, including one mutation associated with mild CF. I thought writing a blog about mild CF would make a good blog topic. Having mild CF means: