Even thought the treatment was triggered by a sinus infection, I can't believe how clear my lungs feel. I hardly ever cough or clear my throat. It is ironic, however, because I want to attend a CF conference in which I need a sputum culture by July 30. I have no sputum to culture. Even after my Acapella treatment or exercising, nothing is coming up. Its good in a way, but frustrating at the same time.
On Thursday I followed up with CF Clinic. The doctor seemed satisfied with the visit, so we pulled the PICC. My PFTs improved since last time, but they were not at there all time best. I felt a little disappointed considering how great I felt and how clear my lung where. The doctor and I talked about using hypertonic saline treatment or pulmozyme to help keeps things at this stage. I think I am leaning toward HST, just to try a treatment that is not a medication.
Following the Clinic, I headed over to the ENT department. They are keeping me on my nasal rinses twice a day and flonase. After the exam, the doctor said my sinuses looked good, mostly clear and no inflammation.
I'm so glad that you are feeling better since your IV's!!! That's great! Do you do sinus flushing daily? That would help keep things from returning to the state you were in. That helps me. What was your PFT?
ReplyDeleteYes, I do sinus rinses twice a day. PFTs were:
ReplyDeleteFVC-105.0%, 3.68; FEV1-93.3%, 2.79, F25-75-60.9%, 2.09
Thank you for all of your support Debbie!
That's a great FEV1! And it's not your all time best?
ReplyDeleteAre you the Colleen that posted on my site about having mild cf??? Sounds like your first IV's were a success!!! And WOW on the PFT's!!!
ReplyDeleteMarcia, yes you have the right Colleen. Thanks for checking out my blog.
ReplyDeleteTera, my highest FEV1 is 96.8 %...I'm pretty close!