During my last clinic visit, my doctor and I discussed being more pro-active with treatments, including Pulmozyme or Hypertonic Saline. She didn't seem to think I needed both, but that I should use one or the other to keep my "post-IV" lungs clear. My treatment ended nearly two months ago and my lungs still feel really clear. I discussed using Pulmozyme and HTS with my previous doctor and his response was "let's save that for when you lose lung function." New doctor is taking a way more pro-active approach, which I am thankful for.
I decided to go with a trial run of Pulmozyme. On Monday I ordered new tubing and mouth piece for my nebulizer. Later in the afternoon, I received a phone call to schedule the delivery of my new nebulizer...the whole package, including a new compressor. I have no idea why, but the insurance authorized a whole new nebulizing system. And with no co-pay. So, now I have two compressors. Although it seems nice to have a back-up or one that I could even take to work, I am hoping to donate my older model to someone less fortunate than me. If you know anyone that could benefit from a new compressor, let me know.
Yesterday, I started my first dose. I was excited to find the treatment only took about 5 minutes. I was disappointed to find the prescription was written for 2 treatments a day. Working full time it is really hard to fit in treatments in the morning, especially when trying to balance out getting enough sleep. But with the treatment taking such a short amount of time, it should be no dig deal...as long as I remember! I am feeling very motivated however, so I am hoping this is not a problem. I feel so lucky to have this treatment available to me and at little out-of-pocket cost. I would be disappointed in myself to have all this available to me and then not use it.