I like taking surveys. Some CF related, some not. Recently, I took the cysticfibrosis.com Patient Adherence Survey. The questions where related to being compliant with treatments, using online resources, and opinions of tracking treatments using a cell phone app. Anyway, I took the survey, because I like doing these things. Last week I was informed that I actually won a prize for participating in the survey. I have no idea what I won, but it is exciting. I certainly did not take the survey to win anything. In fact I didn't even know my name would be part of a raffle. I can't wait to see what I won.
Speaking of surveys, I recently signed up with WWMR to participate in CF surveys. They paid me $50.00 just to join. I am on record as part of a CF panel to participate in research related surveys to improve patient care. I had my first opportunity to participate in a survey which pays $200, plus travel expenses. I didn't qualify, however, because you have to be on a specific medication, which I am not taking. But $200! That would of been nice, especially with the holidays coming up. The man running that survey said they usually do 5-6 a year for CF patients, so there will be more opportunity to participate. I think this is a wonderful opportunity to take an active role in the CF community. Contact me if you have CF or are a CF caretaker and want to participate.
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